St. Martin’s youth will start off its year with a barbecue and pool party at the home of Michelle and Ralph Trieschmann on August 16th from 4-6:30pm. Fr. Chris will serve as master chef and will provide hamburgers and hot dogs. Parents and families of Youth Group members are encouraged to attend. Please bring the whole family, a dish to share, and bathing suits. Fr. Chris will be sending out an RSVP and a food sign-up list in the coming weeks.
I do not know if you are aware of the excruciating journey our founding rector, Howard Park, and his family are following. Howard’s granddaughter, Caroline, has been diagnosed with an extremely rare, incurable disease called Batten’s Disease. Her family became aware of this tragedy only in 2013.
Caroline is just 14. She was born a happy, healthy baby. When she was in kindergarten she started demonstrating some autistic behaviors and learning disabilities and was diagnosed with that disease. She did however continue to make slow progress in school. In second grade she began having Grand-Mal seizures and was diagnosed with a seizure disorder, which for the most part has been managed with medication. She has had several hospital stays due to complications from medicines; however, she has been stable for the past year.
In third grade she ran in 2 – 5K runs with her older sister, who could barely keep up with her, she was so fast. By fourth grade she started having difficulty with balance and was not able to run anymore. She saw doctors in the movement disorder clinic at St. Louis Children’s Hospital. After much testing including MRI and spinal taps, no reason for her motor regression could be found. When she was in fifth grade, Kelly and Than started noticing she was having difficulty seeing and locating objects. She received a retinal test and the results showed no retinal response. Caroline was blind. Because of the retinal test, they suggested she be tested for something called Batten’s Disease. She received a genetic blood test and in July of 2013 she was diagnosed positive for Batten Disease. By this time she was using a walker for stability to walk, and several months after her diagnosis she was using a wheelchair full time. She is currently 14 years old, unable to walk and totally blind. Her speech has slowed to 1-2 words and her mental ability has diminished significantly. Caroline attends a school for special needs children in St. Louis County.
On a personal level, my family is uniquely connected to Howard Park’s. My only child, Dan, was best man for Than, Howard’s son. Than was Dan’s best man as well. Than is also godfather’s for my son’s two boys.
Family and Friends of the Park Family are hosting an event, “Caring for Caroline” at the Atomic Cowboy Restaurant on Thursday, August 13th, to raise funds to benefit Caroline and the Batten Disease Support & Research Association, a 501(c)3 non-profit. All donated funds go directly to supporting Caroline and BDSRA. The family is hopeful of purchasing a special lift van to transport Caroline, as well as to donate funds to BDSRA for additional research of this dreaded disease.
St. Martin’s has always been there for our members and their families and this is a very special opportunity for us as a caring parish. We are asking all of you to look into your hearts to make a donation and/or contribution to the silent auction occurring at the fundraiser. We are also asking as many of our St. Martin parishioners as possible to attend the August 13th event. Your support will definitely make a difference in Caroline’s life, and be such an appropriate way to show our ongoing love and support of our founding Rector’s family. Please do what you can……
We hope that we can count on your support. Please email me for an auction donation form or for more information.
Caring for Caroline—Fundraiser Volunteer
Mark your calendars for Episcopal City Mission’s annual Moment in Time gala.
Enjoy dinner, music and browse a number of auction items, with proceeds going to benefit the worthwhile work of ECM. Stay tuned for more information in the coming weeks, but save the date, Thursday, October 8th!
St. Martin’s is once again supporting Circle of Concern in its annual “Back to School” drive. Please consider helping to provide some of the items listed below and drop them off in Park Hall before July 19th.
- Loose Leaf Binders
- Spiral Notebooks – one subject
- Loose Leaf paper – wide rule
- Pocket Folders – plain colors
- Black or Blue ball point pens
- Red ball point pens
- Glue sticks
- Washable markers
- Dry erase markers
- Color pencils
- Pencil boxes
- Post-it notes
- Composition notebooks
- Scientific calculators
- Flash drives
The Peace Meal Project is a free, fellowship meal for all held every Saturday evening at St. John’s Episcopal Church in Tower Grove. More volunteers are needed for the July 18th meal, which is sponsored by St. Martin’s. The format will be the same as before with a minimum of seven to nine people needed to work the two shifts: Shift #1 – 2:00-4:00pm, Prepare meal & clean up.
Shift #2 – 4:00-6:00pm, Serve meal & clean up.
Volunteers are more than welcome to carpool from St. Martin’s.
To sign up, please email Larry Cornelius or give him a call at 636-458-5723.
Do you have a green thumb? Do you love to play in the dirt? We’re trying to put together a “garden club” at St. Martin’s. The purpose would be to grow garden vegetables so we can sell to folks at St. Martin’s at half the grocery store price. The proceeds would then be given to Episcopal food ministries such as St. John’s Peace Meal, and the Saturday Breakfast at the Cathedral. If you have a gardening interest and would like to work in a food ministry, please email John Lange or call him at 636-273-6476.
Current Day’s agenda
Worship leaders and liturgy
Live blogging open sessions of Houses of Bishops and Deputies
Live blogging of daily media events (add your questions)
Links to any posting by diocesan members in Salt Lake City
You, too, can sign in to the live streaming of both houses and worship on the blog tab: “Media Hub.” If you have some morning or afternoon time and fancy a turn at live blogging, email Beth Felice and she will help get you set up.
A small but faithful percentage of Episcopalians tweet. The right-hand column of each page on the blog displays real-time posts that are marked “#GC78“–the community hashtag for this General Convention. If you tweet, add this tag.
The Convention runs from June 25 through July 3.